Hi everyone!!
Just a quick update before I crash for the night. I've had a cumulative 7 hours of sleep over the past 2 days.
Leah did AWESOMELY today. The IV wasn't a problem, the G-tube went in without issue, and 8 teeth were removed without any damage to her mouth or face.
PRAISE GOD!!
Thank you to all our prayer warriors and to our prayer warrior wranglers. I KNOW that is why everything went well.
Grandpa Guy is there with Leah now while Jeff and I are home to eat real food, take showers and relax a bit - then Jeff will head back to the hospital, I'll sleep here and wake up early to make the drive back into DC to start my G-tube education day.
It looks like we may go home on Saturday!!!!!
We'll most likely all be at the hospital tomorrow night so we can see the New Year come together, as a family.
Thank you to everyone at the hospital who have been so great. Nurse Raena - you are by far our favorite RCU nurse - thank you for being my brain today while I was stressed out and sleep deprived. Doctor Ben - thank you for coordinating everything, for listening to us, believing us and believing in us. June - thank you for being so dedicated to Leah that you'd wake up in the middle of the night thinking about her and ways to make her comfortable and well. Doctor Preciado - thank you for being our advocate and saving grace - and for saving Leah's life back in July. To all the doctors and nurses who took part in Leah's surgery today: Thank you for taking care of my baby.
Thanks again to everyone out there for the prayers ....... keep em coming because we're still not quite done with everything - but things went really well today!!!
Good night and God Bless!
26 comments:
If you see June tomorrow please tell her hello from the Murray family. She took incredible care of Ella her first month of life. Doctors have complimented me on my wound care and I tell them it's because I had a great teacher named June.
I am so glad that Leah did well and is recovering. We will continue to keep her and you all in our prayers.
Katie
Mom to Ella, 2 1/2 with RDEB
Hi there - I just popped over from Jonah's blog and wanted you to know that I've been praying for Leah and for your family! So glad to hear the surgery went well. Will keep praying!
We are praying for your family.
Kristy
www.babybolte.blogspot.com
Mom to
Luke, 6
Isaac, in Heaven
Ben, 3
Asher, in Heaven
Hope 7 months DEB
I'm praying still and just have you heavily on my heart. I will continue to keep you all close to my heart.
♥ Tamara ♥
Hi Meghann - I've never commented before, but have been following Leah for a while now since Patrice mentioned her. I just read on Patrice's blog that Leah passed away. I am so sorry to hear the news. She was such a precious little girl, and it is so unfair that she was here for such a short time. I've already been in prayer for you, and will continue to be.
~Amy
Words cannot express the sorrow I feel for your family after the loss of your precious daughter. Praying peace over your family during this horrendously difficult time.
So glad the surgery went well. I found your blog from The Williams Family Blog. Praying for your sweet girl!
Oh, my heart is so heavy. I have no words...only tears flowing down my face.
Romans 12:15
"...and weep with them that weep."
I'm weeping....~Tamara
I just heard the terribly sad news from Jonah's mom - I am so very sorry. You will be in my prayers. I iwsh there were words that coul dhelp - but there just aren't. I cannot imagine.
I found your blog through Jonah's blog and realized that you live in the same area I do, so I kept reading. I just heard (from Jonah's blog) the news about Leah. I am so so sorry, and if you need anything from someone in the area, please say so. We are a military family at Andrews. (((HUGS)))
Hello, we are praying for you all at this time. I have no words that would be adequate with the sorrow you are now walking thru, just wanted you to know that we are lifting you up to God in prayer.
Luv singingmama
i just heard...I have been following Leah's story after "finding" her from Jonah, but I've never commented. I can't even imagine what you all must be feeling right now. I'm praying HARD that He will reveal Himself to you in new and amazing ways. I know there are no words, so I will just pray.
i just heard...I have been following Leah's story after "finding" her from Jonah, but I've never commented. I can't even imagine what you all must be feeling right now. I'm praying HARD that He will reveal Himself to you in new and amazing ways. I know there are no words, so I will just pray.
We just heard the sad news. We have been praying and praying for little Leah since we heard of her condition and we will continue to pray for your family in the midst of this loss.
I am very sad that I never got to meet your sweet baby girl (or you, Meghann!) but please, if you need anything, we are here for you. We will pray that you will be comforted by "the Father of compassion and the God of all comfort." (2 Cor. 1:3).
Please just know you are in my prayers, my fervent prayers!
i was just at jonah's blog and read the news....i am so sorry. you don't know me and i haven't written on your blog before, but i wanted to let you know that i am thinking and praying for your family. my heart is broken for you and i hope that you can find comfort in the sweet time that you had with leah...i will be praying.
Praying fervently for you and your family.
Praying for you guys
I am so, so very sorry for your loss. I am lifting you and your family up in prayer!!!
I just do not know what to say besides i am praying, praying for guidance and understand and strength
I've been reading your blog for some time...and have been wanting to take your Leah in my arms and kiss her precious face. I should have responded before, but didn't. I know I don't know you but sometimes I'll be up in the middle of the night feeding my baby and you and Leah will be on my mind. The are no words to express my sorrow at the loss of your princess. I can not even imagine...and I am so sorry...sooooo very sorry. And those words mean nothing. I know...i'm a stranger in the blogosphere but am here if you ever need someone to talk to. I can't relate and have no idea what you are going through...but I will try. It sucks....so much.
I'm so sorry about your loss....Praying for your family during this very difficult time. Love and blessings from Hannah in Atlanta, GA
Praying for you.
praying for your family during this difficult time. i am so sorry about your loss.
OOH sweetie.... WOW I don't even know what to say. I am completely speechless. She seemed like she was doing so well after her surgery. I just don't know what to say besides I am sending up lots and lots of prayers for you and your family through this AWFUL time in your life. I am sitting here trying to type through tears. I don't even know what to say besides I am praying feverishly for you. God Bless. May you feel HIS presence through this terrible unexpected tragedy.
My heart is so heavy for your loss of your beautiful little Leah. There are no words to comfort you, but will be keeping your family in our prayers. I'm so very sorry.
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