Monday, November 16, 2009

Weekend Update

Leah wasn't such a happy girl this past weekend.  But, I figured out why she hasn't been eating so well lately.  I figured she was teething .... but in reality: she is a teething machine.  This poor kid is getting her first molars!!  Once I could finagle my finger in her mouth with some Orajel and feel around, I was amazed at how many teeth I felt cutting through her gums.  And she bit me!!  So along with a still somewhat sore eye, she's got a mouth full of hurting gums .... oh yeah, and EB and a trach. 

She does pretty well once her Tylenol kicks in, and the Orajel helps a bit; but what she really likes is frozen binkies.  Her MAM pacifiers can take on enough water that when I pop them in the freezer for a bit, we get nice, cold and soothing binkies.  So I've made many-a trip back and forth from the kitchen to Leah for the past day or so, fetching her freshly chilled binkies. 

She's starting to eat better today and so I'm hoping her mouth pain is easing up.  Yesterday we got up to 22 oz and that was with not having Nurse Ann overnight because it was our every-other-weekend without her.  Ann normally can get in a good 6 or 7 ounces overnight and so I know we would've hit well over 26 oz if she had been here. 

I'm beyond tired right now though.  I woke up at 4 AM yesterday to relieve Jeff who had been sitting up with Leah.  Then I was up being Mommy all day until well after midnight .... then I woke up at 6:45 this morning, just as I normally do, to relieve Jeff's Mom who had come over to sit with Leah overnight.  But - tonight we'll have Ann back so I can sleep soundly knowing Leah's getting all the Atarax, Tylenol, Orajel, frozen binkies and formula she needs.  Thank the Lord for Ann!!

This past weekend Leah's Nana and Aunt Joanne came down from Philly to visit her.  I just wish Leah had been feeling better to appreciate her visitors. 

Nana brought with her a very special gift for Leah.  It was a super cute card from some of Leah's buddies who read her blog and pray for her often.  They are the children of my Mom's co-worker Geneva, and they pooled together their allowance and rather than spend it on themselves, they chose to send it to Leah.  $6.77.  Isn't that the sweetest thing you've ever heard!?  So; to Brooke, Dan, Machi and Trinity: Thank you so much!! I'll be sure to get Leah something extra special and always remind her that it's from you guys and that you're thinking about her and praying for her.  She'll love that!!  God Bless your hearts you guys!

I copied all the photos from my Mom's memory card this past weekend ....... so now I can post some never-before-seen older pictures of Leah.

Here are some of my favorites:


Strike a pose



Look at how tiny she was!




Our favorite way to cuddle ... pre-trach  : (





In the hospital with the Ed Grimley hairdo




"Lets get some more tape on my face for this feeding tube ... yeah, that'll work"




Right after her baptism ..... feeling the Spirit.




War paint

3 comments:

Sara said...

Try Hyland Teeth Tablets. I suggested them to Courtney for Tripp.

We found the Oragel to be really irritating to Sami's gums. i even tried it on myself and its really burns. But of course everyone with EB is different!

Mrs. Cuddles said...

(((little hugs)))) to little Leah. It sounds so painful to be cutting those teeth in the back first. My little one doesn't have any teeth either but I know those fussy days are ahead.

Since she takes a pacifier, you might try freezing them :)

Linda said...

Sure hope Leah starts feeling a little better. After those teeth come in she will be back to her old self, smiling and all. I sure would like to see her smile again. Tell her Santa will be coming next month, maybe that will cheer her up a little. Love you guys! Give Leah a big kiss from Nana. XOXOXOXOXO

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