Saturday, February 6, 2010

Butterfly Bows

Hello again.

I had wanted to post this for awhile ..... because it's so sweet, and cute.

Sara Denslaw, who was always an awesome person to talk to about all things EB when Leah was still here and I needed advice; and who is still an awesome person to talk to in general ..... well, she makes these super cute Butterfly Bows and donates some of the proceeds to organizations that help EB sufferers and their families.  After Leah passed, she designed one and named it after Leah:

It, and all the other bows, can be seen and purchased here.  Leah's bow is in the 'Butterfly Collection' towards the bottom of the page.

I know I have a lot of family and friends out there with little girls who have a lot of hair .... so please think about buying some bows for a good cause and put some more butterflies in the world. 

Oh and I guess you'll notice some changes I'm making to the blog.  I intend to continue doing this blog, as Leah will always be a part of my life, and I will always be looking to do things in her memory, for EB, for EB families, etc.; but now that she's gone I need to do a mini makeover and make it more of a living memorial.  For example, today I added the music player at the top of the page, with some songs that make me think of Leah, and also a button to another bereaved Mommy's page. 


Once A Mother said...

I just want you to know how very sorry I am to learn of the passing of your beautiful Leah. From her story I can see that she was an amazing and brave little warrior. My thoughts are with you as you journey through this loss. I know how incredibly difficult the early months of grief were for me, and am keeping you in my prayers for moments of peace in your heart. xx

Linda said...

Hi Love:
Just love the bow that Sara designed for Leah. I am ordering some and give them as gifts. So glad you will continue the blog for Leah. She will always be with us, in our hearts always. Love you guys so much and still praying for Gods comfort for us all. Love Mom

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