tag:blogger.com,1999:blog-6798852175614594549.post7074896325140185118..comments2023-06-22T11:42:07.367-04:00Comments on Little Lady Leah: Tuesday: Eating and EyesUnknownnoreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6798852175614594549.post-14137101296436277372009-11-18T08:26:08.967-05:002009-11-18T08:26:08.967-05:00My poor baby. Sure glad you had a chance to get i...My poor baby. Sure glad you had a chance to get it out. Crying is the best medicine sometime. You know me, I cry all the time. I always feel better after a good cry. Hang in there love, you are doing an amazing job with this precious little girl. Love you so much and I am sooooo proud of you and all you do everyday. Give Leah hug and kiss for me. Love Mom XOXOXOXOXOXOXOLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-6798852175614594549.post-71005556657495333562009-11-17T23:31:39.910-05:002009-11-17T23:31:39.910-05:00If you, me, and Courtney ever get to (finally) mee...If you, me, and Courtney ever get to (finally) meet in person, I'm pretty sure it's just going to be one big cry fest. So just look at today as good practice.<br /><br />Praying.<br /><br />PatricePatricehttps://www.blogger.com/profile/09720916684467757153noreply@blogger.comtag:blogger.com,1999:blog-6798852175614594549.post-64177878973669394122009-11-17T23:22:09.906-05:002009-11-17T23:22:09.906-05:00~These are what other EB mom's have suggested:...~These are what other EB mom's have suggested: Muro 128 5% ointment to put in his eyes each night, and not to sleep with a ceiling fan.<br /><br />~Refresh PM..or lacrolube or puralube.(they use these in ORs to lubricate the eyes during surgery...and then every day three times a day we use refresh eye drops<br /><br />~Restasis eye drops as a preventative measure from chronic corneal injury, usually from drying out in the middle of the night<br /><br />~Refresh Tears Plus Eye Drops (they are individually packaged in sterile containers). We use these drops up to four times a day in addition to applying about a 1/4" ribbon of ointment prior to naps/bedtime. This child also uses a contact lens when he has an corneal injury to protect the eye while it heals.<br /><br />We like GenTel eye gel. I get it at Target.<br /><br />Hope this helps!Sara Denslawhttps://www.blogger.com/profile/09625588629095084632noreply@blogger.comtag:blogger.com,1999:blog-6798852175614594549.post-12488645082106988412009-11-17T21:49:21.960-05:002009-11-17T21:49:21.960-05:00Oh how I know that "I hate EB; EB sucks"...Oh how I know that "I hate EB; EB sucks" meltdown. You are completely entitled to have them. I'm sure this wasn't your first and it certainly won't be your last. <br /><br />That is an amazing amount of stuff you have accumulated for the clearing house. I did't see that post of Geri's on Facebook - I will have to go and see what I have to donate as well!<br /><br />Hang in there!<br />JanelJanelhttps://www.blogger.com/profile/12741507889298351296noreply@blogger.com