tag:blogger.com,1999:blog-6798852175614594549.post3302349952972662656..comments2023-06-22T11:42:07.367-04:00Comments on Little Lady Leah: Leah hearts coconut oil & Mommy complainingUnknownnoreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6798852175614594549.post-58974175965100033982009-09-26T10:49:17.476-04:002009-09-26T10:49:17.476-04:00Meghann,
I get all the EB news alerts on Google an...Meghann,<br />I get all the EB news alerts on Google and saw your blog. I read your "complaining" one and was moved by your honesty but I can totally relate. You aren't alone with how you feel. I have a son with RDEB. He isn't as bad as some children can be with recessive but hey all EB is bad! I hope you find it comforting on some level that as a parent you aren't alone and all those feelings you have are normal. You are a special mother because you were picked for some reason or another to care for your baby that is so delicate. I mainly wanted to comment that you aren't alone though. <br />Best,<br />Lonette<br />Clearwater, FLHazelbasilhttps://www.blogger.com/profile/11653943884852511676noreply@blogger.comtag:blogger.com,1999:blog-6798852175614594549.post-70677535786274626422009-09-25T09:27:25.835-04:002009-09-25T09:27:25.835-04:00Meg,
For what it's worth, Mom misses you guys ...Meg,<br />For what it's worth, Mom misses you guys too-her cubicle is a shrine to Leah. She really picks up when she goes down to see you and the fact she is skipping out of here in a few months so she can help you should speak volumes. Although we may read your blog, and maybe can't physically help you, you guys are always in our prayers.Marianhttps://www.blogger.com/profile/00972554140615458192noreply@blogger.comtag:blogger.com,1999:blog-6798852175614594549.post-61839762468712158852009-09-23T18:36:48.543-04:002009-09-23T18:36:48.543-04:00Oh Meg..I feel for you. The sacrafices we make fo...Oh Meg..I feel for you. The sacrafices we make for our kids are amazing, aren't they? You've said everything we all are hating about EB and I'm sure there's a few more out there that need to be said. Take care & I'm thinking of you guys ALL the TIME! Aunt JodyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6798852175614594549.post-32946437839015259532009-09-23T16:36:19.778-04:002009-09-23T16:36:19.778-04:00I feel for you too Meg! Glad you are venting beca...I feel for you too Meg! Glad you are venting because it's so good to do that. You are amazing with how you handle everything!! I don't think any of us could do any better than you! You are definately one of my heros! Leah and Jeff too! I guess just living for today is all we can do. You never know what tomorrow will bring. I pray that each tomorrow will bring you happiness, encouragement and hope. Love you, Aunt PennyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6798852175614594549.post-82215200268717245932009-09-23T14:28:08.174-04:002009-09-23T14:28:08.174-04:00I feel for you my baby. You are not alone with al...I feel for you my baby. You are not alone with all the things you hate about EB. You know how I love to hold babies but I really can't hold my only granddaughter. Maybe someday soon you can return to Pa. where you belong. Love you guys so much!!!! So glad you got all of that off your chest!!!Lindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.com